Support and Education Groups
Transplant Living also maintains a support group link:
http://www.transplantliving.org/Community/supportGroupListing.aspx#W
Arizona
Phoenix |
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| Monthly lung transplant support group on campus for pre and post patients and family members. Facilitated by Kathy Lam MSW, LCSW Social Worker, Lung Transplant Program Heart Lung Institute St. Joseph's Hospital & Medical Center 500 W Thomas Rd, Suite 500 Phoenix, AZ 85013 602.406.7009 phone 602.798.0298 fax Kathy.Lam@chw.edu email |
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Tucson |
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| University Medical Center Abdominal Transplant Educational Support Group ] Meets the first Wednesday of each month, except for July and August, from 5:30pm to 7:00pm in Dining Rooms C and D. For transplant candidates and recipients, their friends, caregivers, and/or family. Sandra Thornton, LCSW (520)694-7365 sthornton@umcaz.edu |
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Califorina
Los Angeles |
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| Cedars-Sinai Medical Center 8700 Beverly Blvd. Los Angeles, CA 90048 Weekly Multi-Organ Transplant Support Group Who: Pre- and Post- Transplant, Family and/or Caregivers When: Every Tuesday from 1:00pm - 2:30pm Where: Cedars-Sinai Medical Center Facilitator: John Pappas, LCSW 310-423-6850 pappasj@cshs.org Grupo De Apoyo De Transplante Quien: Trasplante de pacientes y sus familiares Cuando: Cada Jueves, de 10:00 a.m.- 11:00 a.m.. Adonde: Cedars-Sinai Medical Center Facilitator: Marshia Caceres, LCSW Weekly Multi-Organ Relaxation Group Who: Pre- and Post- Transplant, Family and/or Caregivers When: Every Thursday from 2:00 pm - 3:00pm Where: Cedars-Sinai Medical Center Facilitator: John Pappas, LCSW 310-423-6850 pappasj@cshs.org LVAD Support Group Who: LVAD Recipients, Candidates, Family and/or Caregivers When: Second Wednesday of the Month from 10:30am - 12:000pm Where: Cedars-Sinai Medical Center Facilitator: Ellen Anifantis, LCSW 310-423-6378 |
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Santa Clara |
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| Kaiser Permanente: Heart transplant/LVAD patient support group that meets the 2nd Tuesday of the month from 12:00pm-1:30pm in a conference room at Kaiser Santa Clara (700 Lawrence expwy Santa Clara, Ca. 95051). Caregivers and heart failure/pre-transplant patients are welcomed. For more information, contact Janet Stevenson LCSW (office) 408-851-3762 (fax) 408-851-3872 (email) Janet.Stevenson@kp.org | |
Florida
Ft Meyers |
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| The Organ Transplant Support Group meets the first Thursday of each month at Gulf Coast Medical Center 13681 Doctor's Way, Ft. Myers, FL 33912. Website is www.organsupport.org and contact number is 877-Organ TX (674-2689). Offered by the Organ Transplant Recipients of Southwest Florida |
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Gainesville |
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| Shands Adult Liver Transplant Support Group For Pre- and Post-Transplant Patients and Support People! We welcome all patients, support people, family and friends to join in this support group to discuss experiences, share resources and learn from each other. Where: Room 9433. 9th Floor Conference Room (near elevators) When: Every Monday. 10:30 AM - 11:30 AM This is a drop-in group, no reservations required. Kelli Walker, LCSW 352-265-0224 wakell@shands.ufl.edu |
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Jacksonville |
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| Mayo Clinic Florida Support Groups Tuesday: 11:00 AM -12 noon Tuesday: 1:30 PM - 2:30 PM Tuesday 1:00 pm - 3:00 pm Thursday: 11:00 am - 12 noon Nancy P. Ford, LCSW |
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Illinois
Springfield |
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| Support group for pre- and post- transplant patients at Memorial Medical Center 3rd Thursday of every odd month from 6:00 pm to 8:00 pm (January, March, May, July, September, November). Pre transplant patients that have been evaluated as well as post transplant patients are invited. Facilitator: Holly Heinz | Transplant Social Worker | Transplant Services |Memorial Medical Center Phone: 217.757.7178 | Fax: 217.788.4606 | E-mail: heinz.holly@mhsil.com |
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Indiana
Fort Wayne |
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| Lutheran Hospital Transplant Center: Educational Support Group for VAD/Heart Transplant, for pre and post op, 4th Monday of every month. Quarterly Kidney Transplant Educational Support Groups in January, April, July and November. Generally limited to patients from Luther Hospital Program. Kari Troxel, MSW, LCSW, CCTSW | Transplant Social Worker | Tel: 260-435-6273 | Fax: 260-435-6279 | ktroxel@lutheran-hosp.com | |
Indianapolis |
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St. Vincent Sharing Hearts Education and Support Group meets the 3rd Thursday of each month. It is for patients and families with VADS and/or waiting for heart transplants. Faciltator: Jan Hart 317/338-2457 jlhart@stvincent.org St. Vincent Post Transplant Support Group meets the second Thursday of every other month from 1-2:15pm. It is for post transplant kidney and heart patients and families. Facilitator: Amy DeCarlo Frepan 317/338-2235 AXDECARL@stvincent.org |
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Iowa
Coralville |
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Quarterly Lung Transplant Support Group held at two sites in Iowa (opento pre and post patients) Monthly All Organ Transplant Support Group held in Coralville IA (open to pre and post patients) Emily Mathews |
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Maryland
Baltimore |
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| Monthly "Education and Support Group" with a featured speaker and discussion - Participants are U of MD pre and post transplant patients ( and 1 guest ) including kidney, pancreas, liver, heart, lung - meets September through May, excluding December - contact Univ of MD transplant social worker for information Bernice Wolfson MSW LCSW-C Heart Transplant VAD & Lung Transplant 410-328-6508 / bwolfson@umm.edu |
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Michgan
Please click here for a list of support groups in various cities!
Ann Arbor |
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| University of Michigan Heart Txp / LVAD Support Group | |
New Jersey
New Brunswick |
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| KAPS: Kidney and Pancreas Support Group held in the Main Conference Room of the Transplant Center at Robert Wood Johnson University Hospital - 10 Plum Street , 7th Floor, New Brunswick, NJ 08901 7:00 p.m. to 8:00 p.m. All pre and post transplant patients, and potential Donors are welcome to participate, as well as their family and friends. Augusto da Fonseca, M.S.W., LCSW 732-253-3699 Augusto.daFonseca@rwjuh.edu |
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North Carolina
Chapel Hill |
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| UNC Hospitals Patient and Caregiver Lung Transplant Support Group Meets 1st, 3rd and 5th Fridays, 1-2 p.m. Conference call participation is available Transplant Conference Room UNC Center for Transplant Care 101 Manning Drive Chapel Hill, NC 27514 UNC Hospitals Patient and Caregiver VAD/Heart Transplant Support Group Meets intermittently Contact: Laurie McDonald, LCSW, CCTSW Clinical Social Worker & Case Manager UNC Center for Transplant Care 101 Manning Drive Chapel Hill, NC 27514 Lmcdonal@unch.unc.edu office: 919-966-6341 |
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North Dakota
Fargo |
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Sanford Health - Kidney and Pancreas Support Group - open to pre and post-txp patients in the Sanford Health Program. 4:30-5:30pm Kristen M. Fischer, MSW, LCSW, NSW-C701/234-4863 |
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Oklahoma
Oklahoma City |
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1.) The Nazih Zuhdi Transplant Institute at Integris Baptist Medical 2.) The Nazih Zuhdi Transplant Institute at Integris Baptist Medical |
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Tulsa |
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| Liver Transplant Support Group Meets 3rd Tuesday of each month 7:00 PM East Side Christian Church Adult Center 1427 S. Indianapolis Avenue Tulsa, OK (918.835-0173 or 918.369-1581) |
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Pennsylvania
Hershey |
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| Penn State Milton S. Hershey Medical Center provides a quarterly heart transplant support group, and a monthly Mechanical Circulatory Support group. Contact Info: Veronica Umbrell, LCSW Ph: 717-531-4256 or vumbrell@hmc.psu.edu | |
Rhode Island
Providence |
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| Transplant Forum: Educational Series / Support Group for Persons of all organ transplant types at Rhode Island Hospital. Open to all folks previously transplanted or pursuing listing for transplantation or repeattrnsplantation. Meetings are the first Tuesday evenings of the month from 6:30-8PM at Hasbro Children's Hospital, Collis Conference Center . Refreshments and Parking are free. No meetings in January, July and August. Mary Buckley 401-444-8433 MBuckley1@Lifespan.org |
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South Carolina
Charleston |
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| New Charleston Area Transplant Support Group WHO: We are a grassroots group (along with MUSC) supporting each other through the experience of organ/tissue transplants. People who would like to help each other regarding the prospects of awaiting an organ/tissue, organ/tissue recipients or caregivers, along with donor family members and loved ones. WHEN: Meets the last Tuesday of each month from 2 – 4 p.m. WHERE: Life Care Center of Charleston at The Elms. 2600 Elms Plantation Blvd., North Charleston MORE INFO: Carol Dolida @: 552-4038 or send an e-mail to: charlestontransplant@gmail.com |
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Columbus |
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Midlands Area Transplant Patients and families (or support person/s) Support Group |
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Texas
Austin |
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| Heart transplant patients and families: Seton Heart Specialty Care and Transplant offers an Evening Support Group for pre-txp, post-txp, and VAD patients and families. Meets once a month, Sept - June. Listed pre-txp pts and their caregiver must attend pre-transplant education one time monthly. Contact Nancy McDow 512-681-0458 fax 512-681-0501 nmcdow@seton.org | |
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Mended Hearts is a support group that consists of cardiac patients, their spouses and caregivers interested in learning more about their hearts and leading productive and healthy lives. Meets monthly 10 months of the year (no meetings during June or July) on the 4th Tuesday from 5:45 pm to 7:30 pm. Due to the holidays in November and December, the meetings are moved to the third Tuesday of the month. Meetings are held in the third floor lobby at Heart Hospital of Austin. After sharing a delicious heart-healthy meal provided by the hospital, there's a presentation by a doctor or other knowledgeable person on a topic related to our experiences - about surgery, medications, exercise, doctor's visits, etc. There's definitely time for lots of questions! We're always finished by 7:30 pm. We emphasize sharing experiences at our meetings and learning about the latest advancements in cardiac care. As informed patients, we feel better, and our mended hearts will serve us and our families well. If you would like to attend the next Mended Hearts meeting, please call (512) 407-7585 to RSVP with the name and number of those attending. Dinner is free for members and first-time guests pay only $5. If you would like more information, please email MendedHearts@hearthospitalofaustin.com or call (512) 407-7585. |
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North Austin Medical Center Kidney Transplant Support Group 12221 North Mopac Austin, TX 78758 Second Thursday of every month, from 6:30 to 8:00 pm in Classroom 2A Open group for patients and family members. Contact: David M. Diehl, LCSW (512) 901-2883 / David.Diehl@stdavids.com |
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Dallas |
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Methodist Dallas Medical Center Transplant Education and Support Meeting Parking available in the Service Building Parking Lot H at Colorado and Bishop. Press button at gate for attendant and let them know you are here for the transplant meeting. Bridget Lam LMSW |
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Washington
Seattle |
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| University of Washington Medical Center Pre and Post Lung Transplant Support Group Second Tuesday of each month, 12:30-2:00 Plaza Cafe Conference Rooms B/C Contact: Angela Wagner, LICSW 206-598-2676 wagnera@u.washington.edu Solid Organ Transplant Caregiver's Support Group Fourth Wednesday of each month, 12:30-2:00 Plaza Cafe Conference Rooms B/C Contact: Angela Wagner, LICSW 206-598-2676 wagnera@u.washington.edu |
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Wisconsin
Appleton |
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| St. Elizabeth's Hospital North East Transplant Support (NETS) Meets 2nd Wednesday of each month, 7:00pm Linda Ourada (920.731.8845) |
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Madison |
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| Transplant Support Group UWHC, 600 Highland Ave Meets the 3rd Saturday of each month, 1:00pm-3:00pm Deborah Daniel (608.262.8915) |
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Marshfield |
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| Central Wisconsin Area Second Chance for Life Meets monthly, call for schedule Leah Breu, RN (715.389.3677) |
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Milwaukee |
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| 3rd Wednesday of each month, 6pm-8pm Froedert, 9200 W. Wisconsin Ave., Conference Room E, Family Center 414.805.3666 or 800.272.3666 |
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| St. Luke's 3rd Tuesday of every month from 6:30 p.m. - 8:30 p.m. 414.646.5410 |
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Onalaska |
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| Coulee Region Transplant Support Group Franciscan Skemp Healthcare Lower level conference room of Franciscan Skemp's Onalaska Clinic, 191 Theater Road 1st Tuesday of the month at 5:30pm 608.782.2560 |
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Viroqua |
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| Vernon Memorial Hospital Heart Center Support Group 3rd Wednesday of each month, 1-3pm 608.637.4497 |
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